The CRD Fund is focused on research aiming to find a cure or treatment for FOXG1 Syndrome. We prefer research that will cover multiple mutations, such as with forms of gene therapy, stem cell therapy, or general brain repair, as well as mutation-specific research, such as with nonsense stop codons or duplications. We intend to find treatments for all children and adults diagnosed with FOXG1 Syndrome, regardless of their mutation, and understand multiple therapies may be required. Long-term, we plan to replicate successes on additional rare disorders.
The Children's Rare Disorders Fund accepts research proposals on a rolling basis. One- to two-year grants are offered for various amounts, up to $100,000 per year. Exceptions may apply. Continuation of funding may be available for successful proof of concepts.